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Classic Infantile CLN1
General Information: Infantile CLN1, also known as Santavouri-Haltia Disease, is a neuronal ceroid lipofuscinosis (NCL). Out of the numerous strains of Batten Disease, classic CLN1 has the earliest expected onset. As suggested by the name, CLN1 normally affects infants. The onset is typically from 6 to 24 months of age. Signs and Symptoms: From birth,…
Ryan Maynard: His Story
On May 15th, 1985, Ryan Maynard was born. In Fayetteville, North Carolina, Ryan was the oldest son of Joel and Chris. He and his two brothers, Kody and Jaron, were always buddies. Around the age of 5, Ryan started experiencing vision loss. The doctors thought that he had an isolated vision problem. He was completely…
Commonly Asked Questions
There are always those questions we have, but have a hard time finding the answer to. Well, this is meant to help answer some of those questions about Batten Disease.
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Stronger Than Batten 